Down syndrome is a naturally occurring chromosomal arrangement that has always been a part of the human condition, exists in all regions across the globe and commonly results in variable effects on learning styles, physical characteristics or health.
The estimated incidence of Down Syndrome is between 1 in 1,000 to 1 in 1,100 live births worldwide. Each year approximately 3,000 to 5,000 children are born with this chromosome disorder.
Adequate access to health care, to early intervention programmes and to inclusive education, as well as appropriate research, are vital to the growth and development of the individual.
In December 2011, the General Assembly declared 21 March as World Down Syndrome Day (A/RES/66/149). The General Assembly decided, with effect from 2012, to observe World Down Syndrome Day on 21 March each year, and Invites all Member States, relevant organizations of the United Nations system and other international organizations, as well as civil society, including non-governmental organizations and the private sector, to observe World Down Syndrome Day in an appropriate manner, in order to raise public awareness of Down syndrome.
For WDSD 2019, Down Syndrome International focuses on:
Leave no one behind: All people with Down syndrome must have opportunities to live fulfilling lives, included on a full and equal basis with others, in all aspects of society.The 2030 UN Agenda for Sustainable Development, a global plan of action for people, planet and prosperity, pledges that “no one will be left behind”.
According to statistics, each 700th child is born with Down syndrome in the Republic of Belarus. And despite the development of modern ultrasound diagnostics, it is not always possible to determine this syndrome.
"The number of such children is not decreasing, but now it has become easier for young families to find information about Down syndrome. In our country, there are good specialists, the families themselves have become more open, calmly go out, communicate, "- says Olga Shalkovskaya, Director of the youth public organization "Down Syndrome". – When my first daughter was born in 1986 and she could not go to kindergarten, to attend school, because they did not have training programs for children with Down syndrome. But for my second girl, whom I adopted 15 years ago, the doors have already opened. It was possible to choose home schooling, correctional class or regular school".
However, according to the Director of the organization, problems still exist. For example, the quality of education is still lame, there are not enough speech therapists, multidisciplinary specialists, the system of support for people with Down syndrome does not work, their leisure and employment is not developed.
On World Down Syndrome Day, Thursday 21 March 2019, we call upon every person with Down syndrome to tell the world to “leave no one behind”.
#LeaveNoOneBehind #WorldDownSyndromeDay #WDSD19
All people with Down syndrome must have opportunities to live fulfilling lives, included on a full and equal basis with others, in all aspects of society.